SUPPORT

Personal stories of those affected by bowel cancer

Read the personal stories of New Zealanders living with bowel cancer, and their families and supporters

Young people (under 50)

Toni Web
I was 31 when diagnosed with stage 4 bowel cancer, and 5 months pregnant with my second IVF baby.
"I wanted to help, not only for Mum but for everyone else affected. I’m moving my butt for everyone who
"I was 32 when I was diagnosed .It was a slow process getting my diagnosis..."
Wayne
The colonoscopist was like, “everything is pretty good, but THAT shouldn’t be there."
"At 24 weeks pregnant I was diagnosed with stage 3 bowel cancer..."
I’m a singer who writes nice, thoughtful songs. But cancer isn’t polite or thoughtful, it doesn’t worry about offending anyone.
I’m getting back to feeling full of life after radiation, chemo & losing 60cm of my plumbing... your bum is
Bowel Cancer NZ Supporters
Life was trucking along beautifully. I was 39, fit, healthy. Then I read a story about a woman’s diagnosis with
Katy
Bowel cancer never occurred to me even once in that time, I was only 34 and with no risk factors.
"The support from Bowel Cancer NZ has been amazing! I've referred to the website so many times and continue to.”
Battling this cancer has been a struggle. I need unfunded drugs, I'm now trying to buy more time with my
“If something doesn’t feel right, trust your instincts – keep pushing until you get answers.”
Britt's Story
A couple of thousand dollars cost to personally fund a colonoscopy is a small price to pay for an early
Fiona's Story
Because I was in my late 30s, I went through a drawn-out process and delays.
"My name is Nicola and I was diagnosed with stage 4 metastatic bowel cancer last year, at 43..."
It’s a scary thing to be told you have Cancer. I was 44, owned a busy cafe, I was a
"Without chemo my oncologist gave me 10% chance of survival. With chemo, a 30% chance..."
Anita's Story
My name is Anita, I’m 38 and I have survived cancer twice. My story with bowel cancer started when my
I'll never forget Heath's reply…' But you can fix it, right?' All the colour drained from the room and from
"I was diagnosed in November 2021 with stage 3 sigmoid colon cancer. My children were 6, 4 and 3."
Bowel Cancer NZ Staff
Dr Anne Mathieson is a 36-year old GP and bowel cancer survivor - offering a unique perspective as a medical
I was by myself with the surgeon when I was diagnosed... my cancer was caused by a mutated gene...
I should have seen my Dr about it a long time ago, but I was naive and thought it was
I had been told I could be lactose intolerant or have IBS and also tested for celiac disease and colitis.
"After my diagnosis, my GP called me... 'I'm sorry, cancer never crossed my mind because of your age.'"
Everywhere I have been, the recurring theme is that I’m just too young. But I’m hearing of more young people
"It was a slow process getting my diagnosis as I waited far too long to get seen..."
I was diagnosed at the age of 26, with stage 3B bowel cancer, while I was 28 weeks pregnant...
I am a busy and active Mum of two toddlers and receiving a Bowel Cancer diagnosis in early 2023 was
Bowel Cancer NZ Staff
I personally think the biggest challenge in cancer is the mental battle, not the physical one.
My second child was 18 months old and my first visit to the GP I was told, “I was a
As I stood there at the edge of the lake with my toes in the freezing cold water, I was
Bowel Cancer NZ Supporters - stefan
Stefan was 47 when he was diagnosed with stage 3 bowel cancer.
Bowel Cancer NZ Supporters
Despite displaying all of the symptoms of bowel cancer, I was put in the box of “young, fit and healthy”.
Aaron's Story
Nothing could prepare me for the journey that I’ve taken over the last 18 months.
Bowel Cancer NZ Support
I noticed blood intermittently for three weeks before going to the doctor.
Bowel Cancer NZ Supporters
I was diagnosed with Stage 3 Colon Cancer 4 years ago. What followed was a year long rollercoaster ride of
There's a saying "Life begins at 40" but for me it was very nearly the end of my life. Not
Kyley
I was 37 when I was diagnosed - our children were 5 and 7, and our village enveloped us in
"It’s that little bit of laughter that gets us through the toughest times."
Rob - Personal Stories - Bowel Cancer New Zealand
I have become circumspect about the whole thing. I just think it is what it is and I just have
After my diagnosis, all I really wanted was to hear the experiences of women just like me - so here’s
“Please don’t ignore symptoms."
"...not in my wildest dreams did I believe I would get a cancer diagnosis."
Tamsyn
I have a great appreciation for my scars – they’re beautiful proof that I am alive and I’m here.
Bowel Cancer NZ Supporters
In April 2016 at age 38 Renee underwent surgery to remove a tumour from her bowel. Read more of her
I was diagnosed with Bowel Cancer back in 2016 when I was 36 years old. I'd been having mild symptoms
Sarah's Story
I noticed blood intermittently for three weeks before going to the doctor.
Hayley Web
I was 34 with two very young daughters when I was diagnosed with stage 3 bowel cancer, after intense stomach
I was diagnosed at the age of 33. I still remember the conversation with the specialist, my husband Josh and
Bowel Cancer Research Supporters
When someone says life is too short, treat every day like it’s your last. Maybe we should.
“It’s more common than you think – don’t brush it off as something that only happens to older people.”
"This disease doesn't discriminate whether you are young or old...There's always hope. Remember, every storm eventually runs out of rain."
Karen's Story
I just want to make sure that anybody that has the symptoms – please get them checked, I didn’t, don’t
I started needing to move my bowels several times a day and to the point of urgency...
Bowel Cancer NZ Supporters
Anna was fit and healthy and didn’t think she fitted the profile of a bowel cancer patient.
donald
I’m a 'half full' kind of guy... holding on to what the Dr said, “it looked early, I had a
Bowel Cancer NZ Supporters
Hi my name is Jewel Brown and last year at the age of 30 I was diagnosed with Stage 3
Jo
Some days I take optimistic steps forward, some days I retreat in fear. I miss my life pre-cancer.
"Santa brought me cancer for Christmas".
"Diagnosis was complicated by pregnancy, recovery from a caesarean and life with 2 full on boys..."
Bowel Cancer Research Supporters
To put it into perspective, a month after visiting my G.P, I was being discharged from hospital. Read more of
A massive stage 3 tumour was discovered with surgery 4 weeks later. If it wasn’t for my doctor...
Bowel Cancer NZ Supporters
I was active and health conscious, and I turned to Dr Google when I thought my symptoms were down to
Meghan - Personal Stories - Bowel Cancer New Zealand
I think because I have always been "too young" to get bowel cancer, they never thought to check.
"...As a survivor I honestly feel it is one of the best things that has happened to me..."
My sister was staying with us, saying I had to go to the doctor cos I was in so much
Aimee Rose
I was diagnosed with stage 4 bowel cancer aged 29. Cancer is never a straight journey - it's filled with
"What is harder than cancer? Having to tell your loved ones that you have cancer..."
"I am 42 years old, with two kids (11 and 13) who very much still need their mum..."
Jonny's Personal Story
Jonny had always been fit and healthy. He ate well, exercises, and looks after himself.
Kalou
Thankfully it turned out to be a small tumour with 85% chance of cure.
Anaru's Story
I was fortunate that my GP was thorough and followed up on my test results.
"There was so little time between diagnosis and surgery that I don’t believe I truly processed it..."
Bowel Cancer NZ Supporters - Solon
I went to the GP requesting a full check-up and specially requested a Bowel Screening Kit. The test came back
When I turned to flush I noticed something in my poop that looked like dark red lines...
"Cancer doesn’t discriminate—it can affect anyone. You have no choice but to go with the flow and take it one
I had been having blood in my stool for about a year before my diagnosis. When I first noticed the
Bowel Cancer NZ Supporters
They say hindsight is a great thing and that is true. I now realise I was showing signs something wasn't
“I am ALIVE and I am so very grateful for that and that I got to beat this."
Bowel Cancer NZ Staff
If you are wondering whether to get that 'little symptom' checked or not - go to your GP!
“It was just absolutely devastating... It was just, ‘How can this be possible?’ I felt like the world had tipped
Stacey
We really hope my journey can inspire others battling this dreaded disease to step out with a positive mindset.
"[This] photo was nearly 5 years after my surgery and felt like the start of my post-cancer journey."

Age 50+

Kim - Personal Stories - Bowel Cancer New Zealand
I take life a day at a time and make it my priority to find joy every day.
[The Doctor] said I was so anemic she was surprised I was conscious and able to function... So began Bowel
My story is a recollection of my cancer journey which is raw, thought provoking, distressing, educational and yet humorous.
"In Feb this year, I enjoyed walking 73.5kms of the Queen Charlotte Track. In April, I got a shock diagnosis
Bowel Cancer NZ Supporters
I experienced some family stress almost 5 years ago so I decided to visit my GP for a check.
Lisa - Personal Stories - Bowel Cancer New Zealand
Never let the fear of cancer stop you finding out if you have it or not. Finding out early really
Patrick Bowel Cancer NZ
Patrick's daughter Rachel didn’t know anything about bowel cancer until it struck her family twice.
"Yes, my life changed... but there’s always golden moments. We bought a campervan and enjoy that and every day I
"Two weeks after competing in a 160km Ultramarathon, I was diagnosed with bowel cancer. I've been an athlete pretty much
"If I had not done the FIT [the bowel screening] test in January I would not have realised I had
Bowel Cancer NZ Supporters
 Don't be afraid to see your doctor if you have any symptoms that are worrying you.
"I went for a colonoscopy on 1st march. The specialists words - 'I'm sorry Donna, you have cancer'. I was
Robyn Appleton - Personal Stories - Bowel Cancer New Zealand
Never in my mind did I ever think I would ever get cancer.
After 10 years of trying to get a diagnosis, Sara was diagnosed with stage 4 bowel cancer in Dec 2022
Back from the brink. Get checked at the first miniscule inkling that something may be amiss.
"I had no symptoms...How could this be so? I was carrying these nasty passengers without any awareness of illness"
"I'm telling my story to help others, and to encourage anyone who has the opportunity to get screened."
Julie - Personal Stories - Bowel Cancer New Zealand
I switched into how do I make this journey my journey.
"It started as any other year, that was until things got real. As far as it’s my story it’s really
"... In my mind cancer was a death sentence. Which of course it wasn’t because I am still here, alive
Even though I was well aware of our family history, I went through life trying to avoid thinking about it.
There is a history of bowel cancer in my family; my mother having died at 48 and my brother having
“If it wasn’t for BCNZ I wouldn’t be here – simple as that.”
"I am on the Facebook Bowel Cancer NZ Patient and Whanau Support Group which has been an excellent source of
My cancer has taken away from me many things, but I have gained tremendous support from my family and friends.
If having cancer has taught me anything, it's forging through. I've done things that I never thought I'd do.
Judy - Personal Stories - Bowel Cancer New Zealand
I am well and encouraged by my follow up care, it is now all behind me.
"I was 52 when I randomly had a lot of blood when I went to the toilet. I felt otherwise
I had noticed blood in my stool and went to doctor who referred me for colonoscopy, I had cancer, it
John's Story - Bowel Cancer NZ
John had turned 67, retired and was happily setting up a small part time financial advisory service.
Bowel Cancer NZ News
Having made it past 60 relatively unscathed I had no real concerns with my health...

Family perspective

Ryan was only 22 when he was diagnosed with stage 3 bowel cancer, being told “you are far too young”.
"As a family we could not be more proud of the woman she was and the fight she put up
"There are so many things I wish I had done differently, but it was very challenging being the primary caregiver,
Bike To Fight. He is not only my dad he is also my best mate.
Patrick Bowel Cancer NZ
Patrick's daughter Rachel didn’t know anything about bowel cancer until it struck her family twice.
"I felt now was the time to take that step and contribute to this worthy cause".
Bowel Cancer NZ Staff
My wife Dominique will always be remembered as a loving mother who gave everything of herself.
Bowel Cancer NZ
Dad won't ever get to meet any grandchildren or walk my sister down the aisle.
Bowel Cancer NZ Staff
No one deserves to die of Bowel Cancer. Everyone deserves time, dignity and hope.
Reanne - Personal Stories - Bowel Cancer New Zealand
My husband was diagnosed after repeatedly being fobbed off by the GP.
"Dan started getting some pains before and after using the loo about a year ago, he didn't think anything of
Bowel Cancer NZ Supporters
Our ambassador Jenny-May Clarkson shares how her brother's death from bowel cancer affected her family.
My husband Willy, 35-years young, was the most genuine man you could ever meet, a real family man and friend
"Being her eldest child, I struggled to see mum go through this and felt helpless due to not being able
My husband Cliff was 41 when finally diagnosed. He had been fobbed off for about 18 months being told he
“If it wasn’t for BCNZ I wouldn’t be here – simple as that.”
"I would not wish this on any family, and hope these stories can help someone to have the courage to
"In ED we were told my wife has bowel cancer that had spread to the liver, and it didn’t look
Katherine
It is two years since I lost my best friend. I try to really live, and to count my blessings.
Bowel Cancer NZ Supporters
My husband was diagnosed with stage 4 bowel cancer at just 42 years old, on our youngest child’s birthday.

Videos

Bowel Cancer NZ Supporters
I was active and health conscious, and I turned to Dr Google when I thought my symptoms were down to
Anaru's Story
I was fortunate that my GP was thorough and followed up on my test results.
Bowel Cancer NZ Supporters
Life was trucking along beautifully. I was 39, fit, healthy. Then I read a story about a woman’s diagnosis with
Bowel Cancer NZ Supporters
Despite displaying all of the symptoms of bowel cancer, I was put in the box of “young, fit and healthy”.
Bowel Cancer NZ Supporters
Our ambassador Jenny-May Clarkson shares how her brother's death from bowel cancer affected her family.
Bowel Cancer NZ Supporters
Anna was fit and healthy and didn’t think she fitted the profile of a bowel cancer patient.
Britt's Story
A couple of thousand dollars cost to personally fund a colonoscopy is a small price to pay for an early
Jonny's Personal Story
Jonny had always been fit and healthy. He ate well, exercises, and looks after himself.

Health professionals

Bowel Cancer NZ Supporters
Only 10% of bowel cancer is inherited, so the way you live does have an impact says Professor Frizelle who
Bowel Cancer NZ Staff
Dr Anne Mathieson is a 36-year old GP and bowel cancer survivor - offering a unique perspective as a medical
Bowel Cancer NZ Staff member
'My advice is if you’re worried about your symptoms, even if they seem minor, see your GP'.
"I had no symptoms...How could this be so? I was carrying these nasty passengers without any awareness of illness"
Bowel Cancer NZ Supporters
If you’re concerned about your doctor’s diagnosis, keep going back or get a second opinion.

Hope

It’s a scary thing to be told you have Cancer. I was 44, owned a busy cafe, I was a
[The Doctor] said I was so anemic she was surprised I was conscious and able to function... So began Bowel
Bowel Cancer NZ Support
I noticed blood intermittently for three weeks before going to the doctor.
I was diagnosed at the age of 26, with stage 3B bowel cancer, while I was 28 weeks pregnant...
Karen's Story
I just want to make sure that anybody that has the symptoms – please get them checked, I didn’t, don’t
A massive stage 3 tumour was discovered with surgery 4 weeks later. If it wasn’t for my doctor...
When I turned to flush I noticed something in my poop that looked like dark red lines...
"This disease doesn't discriminate whether you are young or old...There's always hope. Remember, every storm eventually runs out of rain."
"Without chemo my oncologist gave me 10% chance of survival. With chemo, a 30% chance..."
Bowel Cancer NZ Staff
I personally think the biggest challenge in cancer is the mental battle, not the physical one.
“If it wasn’t for BCNZ I wouldn’t be here – simple as that.”
"I was diagnosed in November 2021 with stage 3 sigmoid colon cancer. My children were 6, 4 and 3."