SUPPORT

Personal stories of those affected by bowel cancer

Read the personal stories of New Zealanders living with bowel cancer, and their families and supporters

Young people (under 50)

Bowel Cancer NZ Supporters
Anna was fit and healthy and didn’t think she fitted the profile of a bowel cancer patient.
donald
I’m a 'half full' kind of guy... holding on to what the Dr said, “it looked early, I had a
Tamsyn
I have a great appreciation for my scars – they’re beautiful proof that I am alive and I’m here.
Wayne
The colonoscopist was like, “everything is pretty good, but THAT shouldn’t be there."
“If something doesn’t feel right, trust your instincts – keep pushing until you get answers.”
"...not in my wildest dreams did I believe I would get a cancer diagnosis."
Fiona's Story
Because I was in my late 30s, I went through a drawn-out process and delays.
"It’s that little bit of laughter that gets us through the toughest times."
"...As a survivor I honestly feel it is one of the best things that has happened to me..."
Aaron's Story
Nothing could prepare me for the journey that I’ve taken over the last 18 months.
Aimee Rose
I was diagnosed with stage 4 bowel cancer aged 29. Cancer is never a straight journey - it's filled with
Jo
Some days I take optimistic steps forward, some days I retreat in fear. I miss my life pre-cancer.
I started needing to move my bowels several times a day and to the point of urgency...
Bowel Cancer NZ Supporters
In April 2016 at age 38 Renee underwent surgery to remove a tumour from her bowel. Read more of her
"Without chemo my oncologist gave me 10% chance of survival. With chemo, a 30% chance..."
"I am 42 years old, with two kids (11 and 13) who very much still need their mum..."
I had been told I could be lactose intolerant or have IBS and also tested for celiac disease and colitis.
I was diagnosed with Bowel Cancer back in 2016 when I was 36 years old. I'd been having mild symptoms
Toni Web
I was 31 when diagnosed with stage 4 bowel cancer, and 5 months pregnant with my second IVF baby.
Bowel Cancer NZ Supporters
I was active and health conscious, and I turned to Dr Google when I thought my symptoms were down to
"My name is Nicola and I was diagnosed with stage 4 metastatic bowel cancer last year, at 43..."
Katy
Bowel cancer never occurred to me even once in that time, I was only 34 and with no risk factors.
Sarah's Story
I noticed blood intermittently for three weeks before going to the doctor.
Meghan - Personal Stories - Bowel Cancer New Zealand
I think because I have always been "too young" to get bowel cancer, they never thought to check.
Bowel Cancer NZ Supporters
Despite displaying all of the symptoms of bowel cancer, I was put in the box of “young, fit and healthy”.
There's a saying "Life begins at 40" but for me it was very nearly the end of my life. Not
Anaru's Story
I was fortunate that my GP was thorough and followed up on my test results.
I had been having blood in my stool for about a year before my diagnosis. When I first noticed the
Rob - Personal Stories - Bowel Cancer New Zealand
I have become circumspect about the whole thing. I just think it is what it is and I just have
"I was 32 when I was diagnosed .It was a slow process getting my diagnosis..."
I’m a singer who writes nice, thoughtful songs. But cancer isn’t polite or thoughtful, it doesn’t worry about offending anyone.
Bowel Cancer Research Supporters
When someone says life is too short, treat every day like it’s your last. Maybe we should.
"I was diagnosed in November 2021 with stage 3 sigmoid colon cancer. My children were 6, 4 and 3."
Bowel Cancer Research Supporters
To put it into perspective, a month after visiting my G.P, I was being discharged from hospital. Read more of
Kalou
Thankfully it turned out to be a small tumour with 85% chance of cure.
"What is harder than cancer? Having to tell your loved ones that you have cancer..."
Jonny's Personal Story
Jonny had always been fit and healthy. He ate well, exercises, and looks after himself.
Bowel Cancer NZ Staff
Dr Anne Mathieson is a 36-year old GP and bowel cancer survivor - offering a unique perspective as a medical
I was by myself with the surgeon when I was diagnosed... my cancer was caused by a mutated gene...
"I wanted to help, not only for Mum but for everyone else affected. I’m moving my butt for everyone who
As I stood there at the edge of the lake with my toes in the freezing cold water, I was
Stacey
We really hope my journey can inspire others battling this dreaded disease to step out with a positive mindset.
Bowel Cancer NZ Supporters
Hi my name is Jewel Brown and last year at the age of 30 I was diagnosed with Stage 3
"Cancer doesn’t discriminate—it can affect anyone. You have no choice but to go with the flow and take it one
“I am ALIVE and I am so very grateful for that and that I got to beat this."
Bowel Cancer NZ Supporters
Life was trucking along beautifully. I was 39, fit, healthy. Then I read a story about a woman’s diagnosis with
Bowel Cancer NZ Supporters - Solon
I went to the GP requesting a full check-up and specially requested a Bowel Screening Kit. The test came back
Everywhere I have been, the recurring theme is that I’m just too young. But I’m hearing of more young people
I was diagnosed at the age of 26, with stage 3B bowel cancer, while I was 28 weeks pregnant...
After my diagnosis, all I really wanted was to hear the experiences of women just like me - so here’s
Anita's Story
My name is Anita, I’m 38 and I have survived cancer twice. My story with bowel cancer started when my
“It was just absolutely devastating... It was just, ‘How can this be possible?’ I felt like the world had tipped
“It’s more common than you think – don’t brush it off as something that only happens to older people.”
"Santa brought me cancer for Christmas".
Hayley Web
I was 34 with two very young daughters when I was diagnosed with stage 3 bowel cancer, after intense stomach
"Diagnosis was complicated by pregnancy, recovery from a caesarean and life with 2 full on boys..."
"After my diagnosis, my GP called me... 'I'm sorry, cancer never crossed my mind because of your age.'"
"At 24 weeks pregnant I was diagnosed with stage 3 bowel cancer..."
I'll never forget Heath's reply…' But you can fix it, right?' All the colour drained from the room and from
I should have seen my Dr about it a long time ago, but I was naive and thought it was
Bowel Cancer NZ Staff
If you are wondering whether to get that 'little symptom' checked or not - go to your GP!
When I turned to flush I noticed something in my poop that looked like dark red lines...
Bowel Cancer NZ Support
I noticed blood intermittently for three weeks before going to the doctor.
I am a busy and active Mum of two toddlers and receiving a Bowel Cancer diagnosis in early 2023 was
A massive stage 3 tumour was discovered with surgery 4 weeks later. If it wasn’t for my doctor...
Battling this cancer has been a struggle. I need unfunded drugs, I'm now trying to buy more time with my
“Please don’t ignore symptoms."
Karen's Story
I just want to make sure that anybody that has the symptoms – please get them checked, I didn’t, don’t
Kyley
I was 37 when I was diagnosed - our children were 5 and 7, and our village enveloped us in
My sister was staying with us, saying I had to go to the doctor cos I was in so much
It’s a scary thing to be told you have Cancer. I was 44, owned a busy cafe, I was a
Bowel Cancer NZ Supporters
I was diagnosed with Stage 3 Colon Cancer 4 years ago. What followed was a year long rollercoaster ride of
"It was a slow process getting my diagnosis as I waited far too long to get seen..."
I’m getting back to feeling full of life after radiation, chemo & losing 60cm of my plumbing... your bum is
Bowel Cancer NZ Supporters - stefan
Stefan was 47 when he was diagnosed with stage 3 bowel cancer.
Bowel Cancer NZ Staff
I personally think the biggest challenge in cancer is the mental battle, not the physical one.
My second child was 18 months old and my first visit to the GP I was told, “I was a
"[This] photo was nearly 5 years after my surgery and felt like the start of my post-cancer journey."
Britt's Story
A couple of thousand dollars cost to personally fund a colonoscopy is a small price to pay for an early
Bowel Cancer NZ Supporters
They say hindsight is a great thing and that is true. I now realise I was showing signs something wasn't
"The support from Bowel Cancer NZ has been amazing! I've referred to the website so many times and continue to.”
I was diagnosed at the age of 33. I still remember the conversation with the specialist, my husband Josh and
"This disease doesn't discriminate whether you are young or old...There's always hope. Remember, every storm eventually runs out of rain."
"There was so little time between diagnosis and surgery that I don’t believe I truly processed it..."

Age 50+

"It started as any other year, that was until things got real. As far as it’s my story it’s really
Bowel Cancer NZ News
Having made it past 60 relatively unscathed I had no real concerns with my health...
"I am on the Facebook Bowel Cancer NZ Patient and Whanau Support Group which has been an excellent source of
John's Story - Bowel Cancer NZ
John had turned 67, retired and was happily setting up a small part time financial advisory service.
"In Feb this year, I enjoyed walking 73.5kms of the Queen Charlotte Track. In April, I got a shock diagnosis
"I was 52 when I randomly had a lot of blood when I went to the toilet. I felt otherwise
"I had no symptoms...How could this be so? I was carrying these nasty passengers without any awareness of illness"
If having cancer has taught me anything, it's forging through. I've done things that I never thought I'd do.
My story is a recollection of my cancer journey which is raw, thought provoking, distressing, educational and yet humorous.
My cancer has taken away from me many things, but I have gained tremendous support from my family and friends.
Robyn Appleton - Personal Stories - Bowel Cancer New Zealand
Never in my mind did I ever think I would ever get cancer.
[The Doctor] said I was so anemic she was surprised I was conscious and able to function... So began Bowel
Back from the brink. Get checked at the first miniscule inkling that something may be amiss.
Patrick Bowel Cancer NZ
Patrick's daughter Rachel didn’t know anything about bowel cancer until it struck her family twice.
"Two weeks after competing in a 160km Ultramarathon, I was diagnosed with bowel cancer. I've been an athlete pretty much
Julie - Personal Stories - Bowel Cancer New Zealand
I switched into how do I make this journey my journey.
"I'm telling my story to help others, and to encourage anyone who has the opportunity to get screened."
After 10 years of trying to get a diagnosis, Sara was diagnosed with stage 4 bowel cancer in Dec 2022
There is a history of bowel cancer in my family; my mother having died at 48 and my brother having
“If it wasn’t for BCNZ I wouldn’t be here – simple as that.”
"Yes, my life changed... but there’s always golden moments. We bought a campervan and enjoy that and every day I
Lisa - Personal Stories - Bowel Cancer New Zealand
Never let the fear of cancer stop you finding out if you have it or not. Finding out early really
Kim - Personal Stories - Bowel Cancer New Zealand
I take life a day at a time and make it my priority to find joy every day.
"If I had not done the FIT [the bowel screening] test in January I would not have realised I had
Bowel Cancer NZ Supporters
 Don't be afraid to see your doctor if you have any symptoms that are worrying you.
Bowel Cancer NZ Supporters
I experienced some family stress almost 5 years ago so I decided to visit my GP for a check.
"... In my mind cancer was a death sentence. Which of course it wasn’t because I am still here, alive
"I went for a colonoscopy on 1st march. The specialists words - 'I'm sorry Donna, you have cancer'. I was
I had noticed blood in my stool and went to doctor who referred me for colonoscopy, I had cancer, it
Judy - Personal Stories - Bowel Cancer New Zealand
I am well and encouraged by my follow up care, it is now all behind me.
Even though I was well aware of our family history, I went through life trying to avoid thinking about it.

Family perspective

Reanne - Personal Stories - Bowel Cancer New Zealand
My husband was diagnosed after repeatedly being fobbed off by the GP.
"I felt now was the time to take that step and contribute to this worthy cause".
Bike To Fight. He is not only my dad he is also my best mate.
"Being her eldest child, I struggled to see mum go through this and felt helpless due to not being able
My husband Willy, 35-years young, was the most genuine man you could ever meet, a real family man and friend
"Dan started getting some pains before and after using the loo about a year ago, he didn't think anything of
Bowel Cancer NZ Staff
My wife Dominique will always be remembered as a loving mother who gave everything of herself.
"There are so many things I wish I had done differently, but it was very challenging being the primary caregiver,
Bowel Cancer NZ
Dad won't ever get to meet any grandchildren or walk my sister down the aisle.
My husband Cliff was 41 when finally diagnosed. He had been fobbed off for about 18 months being told he
"As a family we could not be more proud of the woman she was and the fight she put up
Bowel Cancer NZ Staff
No one deserves to die of Bowel Cancer. Everyone deserves time, dignity and hope.
Katherine
It is two years since I lost my best friend. I try to really live, and to count my blessings.
Bowel Cancer NZ Supporters
Our ambassador Jenny-May Clarkson shares how her brother's death from bowel cancer affected her family.
"In ED we were told my wife has bowel cancer that had spread to the liver, and it didn’t look
Bowel Cancer NZ Supporters
My husband was diagnosed with stage 4 bowel cancer at just 42 years old, on our youngest child’s birthday.
“If it wasn’t for BCNZ I wouldn’t be here – simple as that.”
Patrick Bowel Cancer NZ
Patrick's daughter Rachel didn’t know anything about bowel cancer until it struck her family twice.
Ryan was only 22 when he was diagnosed with stage 3 bowel cancer, being told “you are far too young”.
"I would not wish this on any family, and hope these stories can help someone to have the courage to

Videos

Bowel Cancer NZ Supporters
Life was trucking along beautifully. I was 39, fit, healthy. Then I read a story about a woman’s diagnosis with
Britt's Story
A couple of thousand dollars cost to personally fund a colonoscopy is a small price to pay for an early
Bowel Cancer NZ Supporters
I was active and health conscious, and I turned to Dr Google when I thought my symptoms were down to
Bowel Cancer NZ Supporters
Despite displaying all of the symptoms of bowel cancer, I was put in the box of “young, fit and healthy”.
Bowel Cancer NZ Supporters
Our ambassador Jenny-May Clarkson shares how her brother's death from bowel cancer affected her family.
Bowel Cancer NZ Supporters
Anna was fit and healthy and didn’t think she fitted the profile of a bowel cancer patient.
Jonny's Personal Story
Jonny had always been fit and healthy. He ate well, exercises, and looks after himself.
Anaru's Story
I was fortunate that my GP was thorough and followed up on my test results.

Health professionals

Bowel Cancer NZ Supporters
Only 10% of bowel cancer is inherited, so the way you live does have an impact says Professor Frizelle who
"I had no symptoms...How could this be so? I was carrying these nasty passengers without any awareness of illness"
Bowel Cancer NZ Staff member
'My advice is if you’re worried about your symptoms, even if they seem minor, see your GP'.
Bowel Cancer NZ Staff
Dr Anne Mathieson is a 36-year old GP and bowel cancer survivor - offering a unique perspective as a medical
Bowel Cancer NZ Supporters
If you’re concerned about your doctor’s diagnosis, keep going back or get a second opinion.

Hope

When I turned to flush I noticed something in my poop that looked like dark red lines...
A massive stage 3 tumour was discovered with surgery 4 weeks later. If it wasn’t for my doctor...
It’s a scary thing to be told you have Cancer. I was 44, owned a busy cafe, I was a
Karen's Story
I just want to make sure that anybody that has the symptoms – please get them checked, I didn’t, don’t
Bowel Cancer NZ Support
I noticed blood intermittently for three weeks before going to the doctor.
[The Doctor] said I was so anemic she was surprised I was conscious and able to function... So began Bowel
"I was diagnosed in November 2021 with stage 3 sigmoid colon cancer. My children were 6, 4 and 3."
“If it wasn’t for BCNZ I wouldn’t be here – simple as that.”
"Without chemo my oncologist gave me 10% chance of survival. With chemo, a 30% chance..."
I was diagnosed at the age of 26, with stage 3B bowel cancer, while I was 28 weeks pregnant...
"This disease doesn't discriminate whether you are young or old...There's always hope. Remember, every storm eventually runs out of rain."
Bowel Cancer NZ Staff
I personally think the biggest challenge in cancer is the mental battle, not the physical one.